Identifying the online needs and challenges of PLWE through analysis of r/Epilepsy posts
Identifying the online needs and challenges of adolescents living with epilepsy through adolescent related posts within the r/Epilepsy community
Self-management refers to the set of behaviors that one must engage in to manage their chronic conditions on a daily basis. Epilepsy self-management is crucial for PLWE, research has shown that good self-management practices can improve the quality of life, self-esteem, and self-efficacy. Therefore, designing self-management technologies for PLWE can significantly improve quality of life. In this work, we conducted semi-structured interview studies to identify the current tools and technologies PLWE used for self-management and their hopes for future epilepsy self-management technologies
App analysis of epilepsy self-management apps in the context of:
Privacy
Accessibility
Self-Management domains
Interview Study with PLWE to identify current tools and technologies for self-management and their hopes for future self-management technologies.